NEDAW 2019 – Come as you are

Header_Come As You Are

As you may know, today kicks off National Eating Disorders Awareness (NEDA) week! I have been a huge fan of this movement since I first learned of it, because this is the one time a year I feel a little more justified spamming everyone with eating disorder aawareness info 😉

This year’s theme is “Come As You Are.” Here’s a blurb from NEDA about it:

Our 2019 theme, Come as You Are, highlights NEDA’s movement towards inclusivity in the greater eating disorder community and our goal of unifying the field of eating disorders. In particular, Come as You Are sends a message to individuals at all stages of body acceptance and eating disorders recovery that their stories are valid. We invite everyone, especially those whose stories have not been widely recognized, to have the opportunity to speak out, share their experiences, and connect with others.

We aim to start conversations with a variety of communities that struggle at comparable rates to those traditionally thought of as struggling with eating disorders. We hope to offer them an opportunity to share their stories, see themselves in others’ stories, and recognize that their experiences are valid and welcome, no matter where they are in relationship to food or their bodies.

So this NEDAwareness Week, come as you are, not as you think you should be.”


Given the theme, I thought I would start off the week by being vulnerable and honest about where I am in this moment. I would love to be able to come here and share all the amazing things I’m doing for my recovery, but that simply isn’t the case. I have felt a lot of shame in that. After over 5 years of treatment and more struggling, shouldn’t I just be healed already? I always imagined that answer to be yes for myself.

Right now I’m in a bit of a slump, maybe leaning towards relapse at this point. Okay it probably is relapse… My old friend excessive compensatory exercise came back after a pretty long hiatus. Along with it, I’m restricting food intake and excluding all but my safe foods. This has lead to my weight dropping from where it was stable for many months and implementation of the dreaded “weight gain protocol” whenever I have a dietitian/therapy appointment. (I’ll spare you the details on that one, but essentially it means lots of Boost/Ensure if my weight isn’t doing what it’s supposed to).

I am struggling. It’s many of the same issues I’ve been through time and time again, yet this also feels so new. I feel almost like I have forgotten how to get from here to a better spot, and even if I did know I have little motivation for follow-through.

One thing that has been super frustrating is all the medical knowledge (and treatment knowledge, too) that I have. I know what happens when you exercise without fueling your body. I can list off all the medical complications. I have experienced them in the past and now even. I know what kind and how much nutrition I need. I can tell anyone else how xyz is going to harm your body. I am so close to becoming a nurse, but I am an almost-nurse who wholeheartedly goes against what she knows to be true. I feel like a hypocrite and fraud all at once.

In this season, I am trying to be more gentle with myself because I deserve it.

This disorder has unfortunately been a big part of my life for many years. The fight isn’t easy at all. I am still here, though. I go to my appointments and do hard things. Being here now doesn’t mean I’ll never recover.

I wish my story was a bit different right now, but I truly feel sharing as I am is truly embodying what NEDA week means: ALL parts of your story, even these messy parts, are accepted here. Come just as you are. You’re all welcome here.